Be The Match.
This past fall, GiGi was diagnosed with Mendelian Susceptibility to Mycobacterial Disease (MSMD) a rare immunodeficiency syndrome. This means she develops infections more frequently and more severely for longer periods of time. Right now she’s on a treatment that is keeping her stable, but before the year is over she needs a blood stem cell transplant. This would cure her. A blood stem cell donation must come from a donor who matches GiGi’s tissue type – like finding her ‘genetic twin’. Getting a stem cell transplant will give GiGi a brand new and healthy immune system.
How can you help this beautiful little girl? If you are 18-44 years old and in good general health, join the Be The Match registry today to see if you are a match for GiGi or another patient like her.
Click HERE to complete a 5-minute registration and a free cheek swab kit will be mailed to you.
Additional details about the Be The Match registry:
For the thousands of people diagnosed every year with life-threatening blood cancers and rare blood diseases,
A Cure Exists.
That cure is a blood stem cell transplant.
Only 30% of patients have a matching blood stem cell donor in their family,
Leaving most patients to rely on Be The Match to help find an unrelated donor and receive treatment.
You may find you are the one and only match for GiGi or for someone else who does not have a match in his or her family.
Watch this one-minute video about the matching process and the two different ways to donate HERE.
CLICK HERE TO JOIN THE REGISTRY
Contact Ann Evans: Aevans@ribc.org or (401)714-6240 with any questions.
Already on the registry? Make sure we have your most up-to-date contact information by visiting:
